Anyone On MacRumors living with or know someone with Multiple Sclerosis

Discussion in 'Community Discussion' started by furryrabidbunny, Jan 4, 2007.

  1. furryrabidbunny macrumors 6502

    furryrabidbunny

    Joined:
    May 10, 2005
    Location:
    Mesa, AZ
    #1
    My Mom was just diagnosed with Multiple Sclerosis today and I was wondering if anyone is willing to share their experiences with it. Just wondering what my Mom and family should expect. It might even force my parents to move because heat is apparently bad for it (probably would follow to help out).
     
  2. liketom macrumors 601

    liketom

    Joined:
    Apr 8, 2004
    Location:
    Lincoln,UK
    #2
    my brother in law has MS , and for about 7 years now- he lives a full life.
    but he cope's with it - just another day as he put's it, infact him and my sister have just had a little boy (my god son) and he say's thats far worse then anything else ;)

    the only changes he has made are - moved to a bungalow and has to have crutches and a wheelchair to get around, but it's not that bad when you get used to it. o and he get's skip right passed the queues for rides at the amusment parks :cool:
     
  3. furryrabidbunny thread starter macrumors 6502

    furryrabidbunny

    Joined:
    May 10, 2005
    Location:
    Mesa, AZ
    #3
    How long did it take for him to require crutches and a wheelchair to get around? I know its all relative... my mom's 54 so it might (probably) will happen sooner with her. Her doctor told her the MS is in a "resting" stage (her words, god knows what the doctor actually said), and that it wont do anything for awhile.
     
  4. liketom macrumors 601

    liketom

    Joined:
    Apr 8, 2004
    Location:
    Lincoln,UK
    #4
  5. furryrabidbunny thread starter macrumors 6502

    furryrabidbunny

    Joined:
    May 10, 2005
    Location:
    Mesa, AZ
    #5
    The doctor told my Mom to look into different drugs and experimental drugs to pick a drug she feels will suit her best.
     
  6. todd2000 macrumors 68000

    Joined:
    Nov 14, 2005
    Location:
    Danville, VA
    #6
    Isn't that the Doctor's job???
     
  7. ~Shard~ macrumors P6

    ~Shard~

    Joined:
    Jun 4, 2003
    Location:
    1123.6536.5321
    #7
    A friend of mine was diagnosed with MS about a year ago. She's already starting to get tunnel vision and has problems seeing. She is a fitness instructor who has always been very physically active and health-conscious, so it's really sad to see what's happening to her. :(
     
  8. furryrabidbunny thread starter macrumors 6502

    furryrabidbunny

    Joined:
    May 10, 2005
    Location:
    Mesa, AZ
    #8
    Yes, but he wants her to know what she is getting into, the different side-effects of drugs. He offered his opinion on what drugs he doesn't want her to be on, but she just wants her involvement. It was more or less to get her to learn about her disease and how it is treated, not to pick a treatment. He is a great doctor. Put her through a month of tests just to make sure it was MS and wouldnt' verify it till he was done. He actually originally thought she suffered a stroke.
     
  9. todd2000 macrumors 68000

    Joined:
    Nov 14, 2005
    Location:
    Danville, VA
    #9
    Thats good, It sounded like he just gave her a list and said "You Pick One". I wish your Mom the best of luck. Sounds like you have a good Doctor there, it's nice that he wanta to get Her involved instead of acting like a know it all.
     
  10. furryrabidbunny thread starter macrumors 6502

    furryrabidbunny

    Joined:
    May 10, 2005
    Location:
    Mesa, AZ
    #10
    Thats what really forced my mom to the doctor finally. I never knew what the symptoms were of MS, but they just seem odd. It was poor vision (quack eye doctor thought she had Glaucoma), inability to stay balanced (when walking or just standingj still), and lack of strength.
     
  11. ~Shard~ macrumors P6

    ~Shard~

    Joined:
    Jun 4, 2003
    Location:
    1123.6536.5321
    #11
    Yep - the disease eats away at your muscles, so it affects people differently. Some lose their sight, some have troubles speaking, others walking, lifting things, keeping their balance... Unfortunately it just keep deteriorating until everything is affected. :(
     

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