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ama0219

macrumors member
Oct 13, 2011
85
4
Greensboro, NC
What's Your Ailment? :p

I have interstial cystitis. It is chronic condition in which you experience bladder pressure, bladder pain and sometimes pelvic pain, ranging from mild discomfort to severe pain. Some days I feel like I'm dying. Finally got in with an urologist that is one of the leaders in the field when it deals with this so I finally have a treatment plan that works.

ImageUploadedByTapatalk1419885722.942083.jpg

Also have dealt with depression in the past and do have an anxiety disorder although it is no bad enough to require medicine.

And I'm nearsighted I've worn glasses since I was five (I turn 27 in two months).
 
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juanm

macrumors 68000
May 1, 2006
1,624
3,053
Fury 161
I like protein, it helps me keep a healthy muscle mass.

Edit: sorry, my ailment is dyslexia. ;)
 
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STEELINOX

macrumors newbie
Dec 29, 2014
1
0
I have had BPPV, and it got me at 2am, while rolling over...
After sitting up it subsided...
Had to leave the room because I dint wanna wake the wifey; spent the rest of the time til 8am when urgent care opened...

The doc manipulated different angled positions of the cranium while the crystals re absorbed, one position made me vomit...

The spinning stopped and she sent me away with nausea meds and a pamphlet on how to do these head exercises on my own at home...

Knock on wood - it hasn't recurred and that happened last summer...
 

Huntn

macrumors Core
Original poster
May 5, 2008
23,483
26,600
The Misty Mountains
I have had BPPV, and it got me at 2am, while rolling over...
After sitting up it subsided...
Had to leave the room because I dint wanna wake the wifey; spent the rest of the time til 8am when urgent care opened...

The doc manipulated different angled positions of the cranium while the crystals re absorbed, one position made me vomit...

The spinning stopped and she sent me away with nausea meds and a pamphlet on how to do these head exercises on my own at home...

Knock on wood - it hasn't recurred and that happened last summer...

Compared to your description, mine seems less severe. Mostly I experience dizziness, but minimal nausea and that only occurs when transitioning from horizontal to verticle or vice a versa and rolling over. Still seeing the ENT specialist though. :)
 

Huntn

macrumors Core
Original poster
May 5, 2008
23,483
26,600
The Misty Mountains
I have interstial cystitis. It is chronic condition in which you experience bladder pressure, bladder pain and sometimes pelvic pain, ranging from mild discomfort to severe pain. Some days I feel like I'm dying. Finally got in with an urologist that is one of the leaders in the field when it deals with this so I finally have a treatment plan that works.

View attachment 522129

Also have dealt with depression in the past and do have an anxiety disorder although it is no bad enough to require medicine.

And I'm nearsighted I've worn glasses since I was five (I turn 27 in two months).

I assume the treatment is medication for the bladder.


I like protein, it helps me keep a healthy muscle mass.

Edit: sorry, my ailment is dyslexia. ;)

My brother had Dyslexia as a child, but seems to have adapted, overcome its handicaps. He works as a teacher in a special education school for kids with a variety of emotional and mental ailments. As part of a program to help these kids learn vocations, they actually build a house during the school year, a house the school owns and then sells when it's completed. How much the kids get out of it depends on the individual.
 

juanm

macrumors 68000
May 1, 2006
1,624
3,053
Fury 161
My brother had Dyslexia as a child, but seems to have adapted, overcome its handicaps. He works as a teacher in a special education school for kids with a variety of emotional and mental ailments. As part of a program to help these kids learn vocations, they actually build a house during the school year, a house the school owns and then sells when it's completed. How much the kids get out of it depends on the individual.

It was a pun aliment/ailment/dyslexia. :D

I'm actually color-blind.

The house-building program sounds amazing: self-sustaining, and hands-on, which is something kids with problems need.
 

ama0219

macrumors member
Oct 13, 2011
85
4
Greensboro, NC
I assume the treatment is medication for the bladder.


Yes. If the medication doesn't work you have to have surgery and installations for the bladder. The urologist I had before was clueless on the condition and actually made it worse. Diet is also a big factor as you need to avoid anything acidic to avoid flares.

I go back next week for a check up on my progress with the new medications. At the appt. after that is when we will discuss it I continue the meds or have surgery.
 

palmerc2

macrumors 68000
Feb 29, 2008
1,623
683
Los Angeles
I can honestly say I don't have one. I get the flu maybe every 2 years, other than that nothing else slows me down or need to go to the doctor for anything.
 

cybertek

macrumors regular
Aug 9, 2011
125
26
Positional Vertigo- BPPV. A week ago I turned over in bed in the middle of the night and the room spun. Next day went to see the doctor who gave me a 30 day supply of Dramamine. He said its not uncommon, and hopefully it goes away. Inner ear issue where crystals form in the fluid of the inner ear canals. When you change the orientation of your head, these crystals bump into the nerves on the edges of the canals causing the dizziness. It mostly bothers me when I turn over in bed and when I move from a horizontal to a verticle position. Fortunately it's mostly dizzyness with minimal nauseousness. Once I get verticle, mostly I'm good. He also said if it lasts longer than a couple of weeks, I should go see an ear specialist to be sure that something else is not going on. I'm 61, but the doctor who is in his 30s, his wife suffers from it. Anyone experience this?

View attachment 521363


I had this about a year ago. My family physician sent me to a physical therapist. He confirmed it was BPPV and then did a maneuver on my head that basically realigned the crystals. I have been fine ever since. He gave me a sheet with instructions on how to do it myself at home if it reoccurs.
 

grahamperrin

macrumors 601
Jun 8, 2007
4,942
648
Dyslexia, BPPV, Sertraline, SSRI discontinuation

Dyslexia

I was probably in my thirties before someone identified the dyslexic 'sides' to me. I can't say that it normally affects my reading or spelling, but it seems to pretty much define how I learn. (If I learn something wrong, I find it very difficult to unlearn, and so on.)

It probably also affects how I 'shape' my writing. What ends up on the page is often nothing like the train of thought that I had when I began writing. The point(s) sometimes get forgotten or lost in translation from head to page, and so sometimes there are misunderstandings, and so on.

I can't say that dyslexia ails me, but other people mentioned it – so there's my experience with it.

Benign Positional Paroxysmal Vertigo

The phrase was new to me. From reading this topic I realise that I brought BPPV upon myself probably three times in the past six months – SSRI discontinuation. My bad – when I'm careless enough to run out of Sertraline, after three days or so I'll get what I can now describe as BPPV. Yeah, I know, I shouldn't let that happen :) but it's not earth-shattering. I knew before it first happened that there's a long, long list of possible side effects to taking and/or suddenly discontinuing such medicines.

FYI https://en.wikipedia.org/wiki/Benign_paroxysmal_positional_vertigo … and I gathered maybe twenty other bookmarks whilst reading up about SSRI and so on. If anyone would like me to add them to this topic, just say.
 

Huntn

macrumors Core
Original poster
May 5, 2008
23,483
26,600
The Misty Mountains
I had this about a year ago. My family physician sent me to a physical therapist. He confirmed it was BPPV and then did a maneuver on my head that basically realigned the crystals. I have been fine ever since. He gave me a sheet with instructions on how to do it myself at home if it reoccurs.

Reading online this got my attention, a benign tumor growing in the vicinity of the ear can mimic BPPV. My Mom had a benign tumor growing by her ear, discovered when she was in her early 70s. I'll be seeing a specialist to rule out this possibility.

An acoustic neuroma is a benign tumor growing on the vestibulo-cochlear nerve. - See more at: http://vestibular.org/node/2#sthash.ok14UYbr.dpuf
(Vestibular.org link)
 

Ariii

macrumors 6502a
Jan 26, 2012
681
9
Chicago
i faint. i went to a doctor that thought it was blood pressure related but we never actually did that
 

lowendlinux

macrumors 603
Sep 24, 2014
5,439
6,735
Germany
The VA sends me a check every month because they think I'm broken from head to toe I disagree though my wife sides with them.
 

AlliFlowers

macrumors 601
Jan 1, 2011
4,542
15,755
L.A. (Lower Alabama)
My goodness this is a sickly group! I consider myself perfectly healthy. I am almost at 2 years remission from breast cancer, which shouldn't recur since I have no more breasts. I do, however, have all kinds of chemo side effects like lymphedema and neuropathy. And hair that just refuses to come back normally.

Every day you wake up on this sound of the ground is a gift. Start every day with a smile and stay positive.
 
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Huntn

macrumors Core
Original poster
May 5, 2008
23,483
26,600
The Misty Mountains
My goodness this is a sickly group! I consider myself perfectly healthy. I am almost at 2 years remission from breast cancer, which shouldn't recur since I have no more breasts. I do, however, have all kinds of chemo side effects like lymphedema and neuropathy. And hair that just refuses to come back normally.

Every day you wake up on this sound of the ground is a gift. Start every day with a smile and stay positive.

More power to ya! :)
 

LizKat

macrumors 604
Aug 5, 2004
6,766
36,273
Catskill Mountains
Immaturity.

It's chronic.

You'll grow out of it.

Hmm. That seems to be taking a really long time for me. Maybe by time I turn 80...

So far, aside from that, my only real ailment is resolved by periodic eyeglass prescription adjustments.

I'm perfectly willing to complain about creaky knees if I sit around for more than an hour but I hardly ever do that.

Just sign me counting my blessings while they last!
 
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grahamperrin

macrumors 601
Jun 8, 2007
4,942
648
Happily immature cat lovers

Growing out of immaturity

Hmm. That seems to be taking a really long time for me. Maybe by time I turn 80. …

Immaturity can be a great thing. I like to think that it's pleasantly prolonged with people who love cats. I love 'em, as does my mum who turned 80 last year.

… Start every day with a smile and stay positive.

The cats see to that :)
 
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0098386

Suspended
Jan 18, 2005
21,574
2,908
- Short sightedness, so bad that I've finally decided to get my eyes zapped. But it means going to the best (OR, the most expensive :() clinic for it in my country. For the eye people amongst us, I'm -11 in both eyes.
- Vitiligo. Currently mild, but I'm pale already so it won't be a problem.

I've got some weird health pluses though. I gain muscle and heal quickly. Probably something to do with protein. Might join the X-Men. Dunno yet.

I have interstial cystitis. It is chronic condition in which you experience bladder pressure, bladder pain and sometimes pelvic pain, ranging from mild discomfort to severe pain. Some days I feel like I'm dying. Finally got in with an urologist that is one of the leaders in the field when it deals with this so I finally have a treatment plan that works.

View attachment 522129

Also have dealt with depression in the past and do have an anxiety disorder although it is no bad enough to require medicine.

And I'm nearsighted I've worn glasses since I was five (I turn 27 in two months).
Not gonna lie, I thought that image was something else at first.
 

annk

Administrator
Staff member
Apr 18, 2004
15,140
9,351
Somewhere over the rainbow
Every day you wake up on this sound of the ground is a gift. Start every day with a smile and stay positive.

Agree 100%. I am happy to wake up each day, and that's a great way to start the day.

I had a stroke early in 2013 (vertebral artery dissection that led to a blood clot, misdiagnosed twice in two days as a tension headache), despite being a poster child for the person-least-likely-to-have-a-stroke. :rolleyes: Low BP, low cholesterol etc. I'm back to normal though, despite having to be intubated at the worst point - got amazing help quickly.

Had bad chest pains during my first post-discharge rehab session, and the PT sent me right to the ER. My heart is fine, the cardio god at the hospital said the pains were likely esophageal spasms. They happen a few times a year, last about 20 mins, and would be very scary if I didn't know what they were.

As a result of the above, I had scans taken that showed a large hemangioma on my liver, and a uterine fibroid (now at the size of an app 10-week fetus). The fibroid (my second) is getting taken care of this spring, and the new scans will put me in the system for the hemangioma as well.

I had the stroke in the US (where I grew up) and live in Norway, so as a result of the hassle with cross-continental medical records (which actually has gone pretty well), I'm getting the non-scary (liver/uterine) stuff taken care of now. I had enough on my plate with stroke rehab, and was assured that the liver and uterus things weren't acute at all, but that I should get them taken care of eventually. So 2015 is eventually. :p

Despite all of this, I consider myself a very healthy person. Very, very few sick days from work for things like cold/flu. Healthy diet, reasonable amount of exercise, weight under control, and get regular check-ups. :)
 
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grahamperrin

macrumors 601
Jun 8, 2007
4,942
648
Strokes, serendipity, mental and emotional health

… I had a stroke early in 2013 (vertebral artery dissection that led to a blood clot, misdiagnosed twice in two days as a tension headache) …

You reminded me of my late aunt, who (I'm almost certain) had two strokes before she became an inpatient for something entirely unrelated. She casually mentioned the symptoms to me, as a side note to whatever we were discussing, with no fuss about the fact that she had not sought treatment following either incident. She was neither ignorant nor stupid, just matter-of-fact about such things. Like, it happened then she got better then it happened again and she got better, end of story, history. Not misdiagnosis, just … diagnosis wasn't part of her big picture. I suggested that she should tell her consultant, or one of the nurses (or allow me to share the information) but it was a complicated time – her husband had died just a few days earlier – and she didn't want the stroke stuff mentioned to anyone. All things considered, I took the difficult decision to respect her wish – difficult, because I felt the health professionals should know – and so it was a long, long time before I mentioned it to anyone (keeping the secret so long from her sister-in-law, my mum, weighed heavily on my conscience). Now I feel more than a bit weird sharing that bit of someone else's history online, but I like to think that the health professionals did at some point learn about (or suspect) the past strokes. She was well cared-for when I saw her, and so on. I'm posting here because of this:

annk, thank you! Unintentionally you caused me to go fishing online and discover what happened to their home, in a remote part of Scotland, after their deaths. What I found was heartwarming. Good for my mental and emotional health, which was lacklustre in 2014. It's a very special day for me tomorrow so the uplift was just what I needed! https://www.facebook.com/permalink.php?story_fbid=10152632865241693&id=220948007933592 is, for me, some closure …
 
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AlliFlowers

macrumors 601
Jan 1, 2011
4,542
15,755
L.A. (Lower Alabama)
Growing out of immaturity


The cats see to that :)

Couldn't have gotten through anything without my cats!

----------

Agree 100%. I am happy to wake up each day, and that's a great way to start the day.

I had a stroke early in 2013 (vertebral artery dissection that led to a blood clot, misdiagnosed twice in two days as a tension headache), despite being a poster child for the person-least-likely-to-have-a-stroke. :rolleyes: Low BP, low cholesterol etc. I'm back to normal though, despite having to be intubated at the worst point - got amazing help quickly.<snip>

Despite all of this, I consider myself a very healthy person. Very, very few sick days from work for things like cold/flu. Healthy diet, reasonable amount of exercise, weight under control, and get regular check-ups. :)

Which only goes to show ya that doctors the world over are quick to pass off women's problems as stress.

I hope you're back to normal quickly!
 

annk

Administrator
Staff member
Apr 18, 2004
15,140
9,351
Somewhere over the rainbow
Which only goes to show ya that doctors the world over are quick to pass off women's problems as stress.

I hope you're back to normal quickly!

Well, in my case, my father had died the same day the headache started, so they probably thought that having spent a few sleepless nights at the hospice prior to his death, subsisting on coffee, after flying over from Scandinavia, was the cause of the headache. Understandable, at least for the first doctor.

But I do think that on the second day, when the next doctor sent me to the ER to have scans taken "just to be sure" even though he suspected the first diagnosis was correct, they should've TAKEN the scans, and not given me IV headache meds and two sheets of paper with instructions for reducing stress. :rolleyes:

And yes, I'm back to normal. I was very lucky.:)
 
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