Become a MacRumors Supporter for $50/year with no ads, ability to filter front page stories, and private forums.

Foggydog

macrumors 6502
Original poster
Nov 8, 2014
408
493
Left Coast
Good evening forums;
I have been away for almost six months now. The reason?
Well in mid January my mother and wifey noticed I was starting to blink at a higher rate. And as a long haul trucker it was difficult to figure out what was happening. By mid March the blinking was quite a bit worse and my right eye felt like it was being yanked from the socket. So I got a new eye exam and was told my symptoms would disappear with proper lenses. ( the prescription for the right lense was 1\2 power to strong.
So a couple of weeks later I had my new glasses and slowly my right eye started to feel better, but everything was still distorted.
Oh, and my blinking had become squinting and twitching of my left eye. I could barely drive and couldn’t read anything on my iPad.
By June my eyes were so bad I would occasionally blink so hard that my eyes would be closed for several seconds all while driving a semi.

I got into an ophthalmologist in SLC, where our company is based and he said I had Blepharospasm and referred me to the neuro ophthalmologist at the University hospital. I was completely diagnosed with both Blepharospasm as well as Meige’s syndrome which causes uncontrollable twitching of the face and jaw. It was also discovered that the second optometrist didn’t check my eyes for the four biops prism I needed. Come to learn that this is a rare neurological disorder that occurs in midlife. From about 40-70 years of age. It more often effects women but of course men get it as well.

This was a week ago. There isn’t a cure for this disorder and as far as I understand experts in the field have no concrete idea why the brain starts sending neurons to the eyes and face at an extremely high rate. But stress, and even social situations can exacerbate the symptoms.
There is treatment however. Medical Botox injections around the eyes, and the doctor gave me a couple of injections around my mouth to help with the Meige’s syndrome. This is my first day after treatment and I can already feel some healing like my eyes are not blinking as much and I can read print on my iPad. The doctor says by Monday I should be able to go back to driving and will receive more injections in three months.

I have posted this here for general discussion for all as someone out there may have a friend or family member with the same symptoms.

Pete.

P.S.
I cannot believe that wealthy socialites actually pay big bucks to be stabbed many times around the face. Even with a numbing cream I let out a barbaric yelp once or twice.
 
Last edited:
It is awful to have your eyes close by themselves at inconvenient times. It is great you got help! Wait a couple of weeks and the effect of the toxin will peak at its maximum. Normally it takes 3-4 days for the toxin to kick in, and hopefully the effects will last more than 3 months (i have patients in whom it lasts up to 6 months).

Get well soon.
 
It is awful to have your eyes close by themselves at inconvenient times. It is great you got help! Wait a couple of weeks and the effect of the toxin will peak at its maximum. Normally it takes 3-4 days for the toxin to kick in, and hopefully the effects will last more than 3 months (i have patients in whom it lasts up to 6 months).

Get well soon.

Thank you. I hope to be driving again by Monday according to the Doc.
 
i had this problem. my neurologist prescribed two medicines for 3 months. when the medicine stopped, after some days again the problem started. so, i continued the medicine for 3 more months and stopped. again it started. then i took only one tablet of the two (discarded the one which gives dizzy feeling) for almost 7, 8 months and stopped the medicine by tapering. GOT cured and no return for more than , 6 years! Now, i am free of this demon! Pl try . I think the medicine is pacitane.
 
Iv just had my 3rd lot of botox injections about a month ago for treatment of blepharospasm and it hasnt changed a thing.. my neurologist said by the 3rd or 4th we should see results but its still the same. It comes in waves of being manageable to bad but im not sure what to do. Im considering getting the surgery done for it but still unsure.
My vitamin b6 was 5fold aswell and dealing with that helped abit but it was still bad before and after the time frames of b6 being an issue.
Wondering if anyone else had similar issues?
 
Register on MacRumors! This sidebar will go away, and you'll see fewer ads.