I have been very ill now for 13 year after delivery a major project in technically a forbidden are in the bush in Australia.
Log story short I woke 2 days after 4 months on site screaming in what I thought at the time was the worst pain of my life, I had a lot to learn.
When presented at hospital all that was found on me was 3 bites on my leg. The day before I did a 22 km walk through for site shut down and check. Yeap correct PPE. Taped pants and shirt etc.
3 months in and after another MRI & further deterioration it was noted I had for long clear snake like things in my lumber spine which were eating it away and one in my knee nearly smashing my tibia from a previous knee surgery. I know it was clear because when the doctors tried to shoot cortisone into my knee the needle would not go in and napped. They did this as was about to die mum and did 1 1/2 weeks later and I wanted to be with her.
At my mums bedside in a wheelchair in excruciating pain and weird stuff happening to me the clear thick stuff started to come out of my leg where the doctors attempted to put the needle. I was rushed into surgery to save my tibia when I got back to the hospital, 2 weeks later.
My health continued to deteriorate and still does and 3 years ago a repeat happened and I woke screaming but this was 1,000 times worse. My cervical spine was being eaten away. To date I have had 4 major episodes and each one of them has cause a major issue and concern for me not to mention it almost cost me my life several time. Trust me when I say for 6 to 8 months each time I felt like I was in Satans den & they were throwing me a party.
13 years later from a 40 yo woman, my nervous system has been wiped out: immune: muscularskelatal damaged beyond recognition; vascular system and I can keep going on. The worst for me is I have no expiry date so I have to fight this thing that the doctors don’t have a clue about. Last count I had min 32 neurological conditions and right now I am trying to save my brain. The only thing I have going for me. Don’t worry I am not crying over what happened. I needed to explain to make my point.
POINT
My carers and I got the apple 4 when it first came out due to falls and how many bones I have broken. The problem is the watch and falls is useless to me and many like me because the algorithm is incorrect.
During the past few years I came across this app on the App Store with a very poor rating. The remarks interested me and so did the terms of agreement.
I contacted Smart Monitor who is California University who is linked with the neurological department at California hospital Inspyre.
They are developing and amazing app that you turn on if you start to feel off. If monitors poor balance; appetite; digestion; memory and so much more. It’s being developed for epilepsy.
I asked if I could try the app given what was happening to me. Being thrown across a room from nerve like seizure attacks on my body; lose my speech; could not sleep for up to 3 to 5 month because I was being ripped to pieces like an animal. I had odema pouring off me size 8/10 and within an hour my stomach would be size 22 for a year damaging my major organs. Taking grow. Men Down in these attacks and I have not walked in 11 to 13 years. Go figure. Black out at the drop of a hat. 3 carers all had a breakdown an burnout after first attack even veteran doctors were scared to come near me because I was in the too hard basket and exhausting to deal with. I was never angry or aggressive, it was the intensity of what was happening.
Apple have not looked hard enough for people like Smart Monitor who are under a government grant and have a gem of a product.
When they connected me I knew why the people were frustrated and thought they were useless because it takes a few days to set you up. Ironically I had Been designing a similar technology for the rail network here in Australia and I know it was a good structure and they had smart people working on it.
You have to see this product to believe it. It has so many benefits.
The only benefit Apple Watch has been to me is monitoring my sleep and blood pressure as we know I am in high pain there. It also gave us graphing to see what my cycle way and saw it’s escalating but it could be so much more to so many people whether they are I’ll or not.
Thank you for hearing me out and I apologise about it being so long winded however I have spent years speaking to developers and have even offered my services for free to help them given it was my back ground but then you don’t really get super passionate unless it is happening to you or someone you love.
Stay well and safe everyone. Promise yourselves to do something nice forgoirself each day even if it is a word of encouragement or congratulations on something well done or a kind deed. But most of all try remember to smile at least at 1 stranger a day, you never know you might have made that persons day.
Stay safe in these trepid times.
Brunette Rhyme
Log story short I woke 2 days after 4 months on site screaming in what I thought at the time was the worst pain of my life, I had a lot to learn.
When presented at hospital all that was found on me was 3 bites on my leg. The day before I did a 22 km walk through for site shut down and check. Yeap correct PPE. Taped pants and shirt etc.
3 months in and after another MRI & further deterioration it was noted I had for long clear snake like things in my lumber spine which were eating it away and one in my knee nearly smashing my tibia from a previous knee surgery. I know it was clear because when the doctors tried to shoot cortisone into my knee the needle would not go in and napped. They did this as was about to die mum and did 1 1/2 weeks later and I wanted to be with her.
At my mums bedside in a wheelchair in excruciating pain and weird stuff happening to me the clear thick stuff started to come out of my leg where the doctors attempted to put the needle. I was rushed into surgery to save my tibia when I got back to the hospital, 2 weeks later.
My health continued to deteriorate and still does and 3 years ago a repeat happened and I woke screaming but this was 1,000 times worse. My cervical spine was being eaten away. To date I have had 4 major episodes and each one of them has cause a major issue and concern for me not to mention it almost cost me my life several time. Trust me when I say for 6 to 8 months each time I felt like I was in Satans den & they were throwing me a party.
13 years later from a 40 yo woman, my nervous system has been wiped out: immune: muscularskelatal damaged beyond recognition; vascular system and I can keep going on. The worst for me is I have no expiry date so I have to fight this thing that the doctors don’t have a clue about. Last count I had min 32 neurological conditions and right now I am trying to save my brain. The only thing I have going for me. Don’t worry I am not crying over what happened. I needed to explain to make my point.
POINT
My carers and I got the apple 4 when it first came out due to falls and how many bones I have broken. The problem is the watch and falls is useless to me and many like me because the algorithm is incorrect.
During the past few years I came across this app on the App Store with a very poor rating. The remarks interested me and so did the terms of agreement.
I contacted Smart Monitor who is California University who is linked with the neurological department at California hospital Inspyre.
They are developing and amazing app that you turn on if you start to feel off. If monitors poor balance; appetite; digestion; memory and so much more. It’s being developed for epilepsy.
I asked if I could try the app given what was happening to me. Being thrown across a room from nerve like seizure attacks on my body; lose my speech; could not sleep for up to 3 to 5 month because I was being ripped to pieces like an animal. I had odema pouring off me size 8/10 and within an hour my stomach would be size 22 for a year damaging my major organs. Taking grow. Men Down in these attacks and I have not walked in 11 to 13 years. Go figure. Black out at the drop of a hat. 3 carers all had a breakdown an burnout after first attack even veteran doctors were scared to come near me because I was in the too hard basket and exhausting to deal with. I was never angry or aggressive, it was the intensity of what was happening.
Apple have not looked hard enough for people like Smart Monitor who are under a government grant and have a gem of a product.
When they connected me I knew why the people were frustrated and thought they were useless because it takes a few days to set you up. Ironically I had Been designing a similar technology for the rail network here in Australia and I know it was a good structure and they had smart people working on it.
You have to see this product to believe it. It has so many benefits.
The only benefit Apple Watch has been to me is monitoring my sleep and blood pressure as we know I am in high pain there. It also gave us graphing to see what my cycle way and saw it’s escalating but it could be so much more to so many people whether they are I’ll or not.
Thank you for hearing me out and I apologise about it being so long winded however I have spent years speaking to developers and have even offered my services for free to help them given it was my back ground but then you don’t really get super passionate unless it is happening to you or someone you love.
Stay well and safe everyone. Promise yourselves to do something nice forgoirself each day even if it is a word of encouragement or congratulations on something well done or a kind deed. But most of all try remember to smile at least at 1 stranger a day, you never know you might have made that persons day.
Stay safe in these trepid times.
Brunette Rhyme