I am disabled and suffer from a progressive condition. I suffer from CMT (Charcot-Marie-Tooth disease) CMT is a genetic condition that damages peripheral nerves. These nerves are responsible for passing on commands from the brain to the muscles (motor nerves) and for passing information to the brain about sensations, such as pain, heat, cold, touch, importantly for balance – where your joints are in space (sensory nerves). When these are damaged, people are said to have a neuropathy. Because of this nerve damage, people with CMT may find that some of their muscles become slowly weaker over the years, particularly in their feet and hands. Some find that feeling becomes duller, or numb, in the same areas. In the UK, around 25,000 people are thought to have CMT, making it the most common inherited neurological condition. I have lost the use of everything below the knees and wear leg supports to walk. I have lost use of my thumbs and my hands are getting worse. I also have a small heart too. But I'm doing ok, at 15 was told by 20 be in wheel chair. Im 33 next week and still walking. My balance is getting worse though. I am also hyper sensitive to cold and cannot sense heat properly. I did write an article about my condition for a support group but quite long so will not post here. Do not want bore you all. Do other members have problems they have to deal with?