ResearchKit Receives Thousands of Sign-Ups Following Launch

[Tycho24]

You probably don't know this, but the recruitment of one person for a clinical trial costs about $4000 and every year more people are needed per trial. A typical vaccine for example need about 40.000 subjects before it can be submitted for approval by the FDA or the EMA. Imagine the costs associated with clinical studies. So, many pharmaceutical companies recruit globally, especially in low wage regions.

Another factor is that many studies (for e.g. gene therapy) need to rule out genotypical effects, which basically means that test subjects or patients need to come from different parts of the world.

So yes, there are plenty of reasons why this app should in the future be opened up to the rest of the world.

Lol, you guys all sound like Apple announced "we don't plan on ever bringing this out anywhere else".
You sound ridiculous. OF COURSE, like iTunes Match, Apple Pay, and every single other service I can think of that they've made... it will expand to other countries as soon as possible.
If they waited until it could drop everywhere in the world simultaneously, it wouldn't come out for ten more years. That would please you???

 

[JamesPDX]

Your Data Is Important To Us

New research app for "diabetics".
Oh, Type 2 diabetes only.
Millions of type 1 diabetics left out.
Guess It'll have to be the InfraV watch for all of us.

Yeah, leaving out Type 1 makes this seem more like a heavily-veiled exercise in data-capture, (i.e., Pre-Marketing New Things for People to Buy) more than pure medical science. Time will tell. :

Sincerely,

THX-1137

 

[ScottNWDW]

My guess is that it's the choice of the research facilities collecting the data for their studies on where the demographic is limited to.

Exactly. It's the research facility that is collecting data. Apple is only the platform and/or tools for which the data is collected. Apple itself is not dictating who can or cannot participate. In this case it would be Stanford University. It is their study, not Apple's.

 

[peterdevries]

Lol, you guys all sound like Apple announced "we don't plan on ever bringing this out anywhere else".
You sound ridiculous. OF COURSE, like iTunes Match, Apple Pay, and every single other service I can think of that they've made... it will expand to other countries as soon as possible.
If they waited until it could drop everywhere in the world simultaneously, it wouldn't come out for ten more years. That would please you???

Please read my post again and come to a different conclusion, "LOL".

 

[Tech198]

It's like seeing a flood of ants enter the market in mass..

Reckon open source had something to do with it.. ??

Maybe if Tim says "it's closed" there may have only been half this.

Apple is finally unraveling, (or something is), in the works and they are realizing with iOS 8 too to be open with third party developers..

Let's keep it this way.... ok

 

[StyxMaker]

Not to be a Debbie Downer, but I'm a little worried about privacy issues.



Also, what happens if someone decided to sign up for one of these things, and then changes his/her mind? Can he/she opt back out of the research?

Yes.

 

[Tech198]

Not to be a Debbie Downer, but I'm a little worried about privacy issues.

ha ha... There is always going to be users privacy issues with anything..... closed or open, doesn't really matter anymore.

 

[ThisIsNotMe]

carplay = yes, alpine and pioneer have models as well as new cars coming out this year and next.

home kit = don't know of any yet. I wish Apple would make an app that integrates with Rachio, Hue, etc so I have one app to do it all.

The kits are for manufacturers to deploy applications. They are nothing more than API frameworks for developers to use and integrate with the OS - like OpenGL, Quartz, Cocoa Touch, ect.

The 'kits' take up almost no space.

 

[Andrei90]

Sooooooo.......
Before this, did a lot of medical research done in the US include Dutch citizens?? *confused*

But Apple boasted the +700 million when they introduced ReasearchKit 2 days ago. They clearly stated Researchkit had the advantage of having 700 million iPhone owners at its disposal, that statement implies researchkit apps should be available for all +700 million iPhone owners wich is clearly not the case at the moment.

 

[SaraMac95014]

So a person can sign up to participate in a diabetes study, for example, even though they don't have diabetes?
This will be very helpful.

And regarding demographics of Apple, a higher education doesn't always mean smarter. In fact, people like the limited ability of iPhone because it's simple, even though they've never tried another brand.

 

[unplugme71]

The kits are for manufacturers to deploy applications. They are nothing more than API frameworks for developers to use and integrate with the OS - like OpenGL, Quartz, Cocoa Touch, ect.

The 'kits' take up almost no space.

I think you responded to the wrong person.

 

[guzhogi]

Are you that naive in thinking that they haven't thought of this yet?

A team full of medical doctors, PHDs, analysts, engineers, couldn't have thought.. hmm maybe people want to exit something after they signed up.

I asked not really if they had thought about your privacy, but rather do they care about it? I know there are laws protecting your privacy, but there are too many people & corporations who don't care about the law & what's right if it means making money. I apologize, but I just get cynical sometimes.