Which version of the watch are you using and how are you using it to document your POTS? I'm asking because I know someone who has POTS and we're trying to figure out how to best document the case before consulting with specialists.
I upgraded from the 0 to the 4. Right now I’m mainly just checking it when I’m having an issue. Like, why is my heart pounding and I’m in a complete sweat when I walked 20 feet to my car? Oh look, 143. Awesome. Lol
I had a battery swell issue with my 0, and they had replaced it with a 1 that I couldn’t sync to my phone when I got it back. I lost a few months of realizing what was going on because I wasn’t using it. Now I can look at it, note in the Cardiogram app what I was doing and move on. For me right now it gave me the confidence to flat say to the doctor - something wonky is going on. While that should always be there, I keep having them say everything is part of fibromyalgia, here is another pill or larger dose, leaving me with the feeling no one wants to find out what is going on. I guess they aren’t paid enough for that.
I’m not sure how helpful the ECG feature will be for me, I do plan on taking one when I’m having an incident. I do know though that the heartbeat feature alone has been worth it. Last week I was able to see that after the spike to 153, I dropped to the mid-90s even laying down and stayed there for hours. Sitting up pushed me closer to 100. I didn’t realize the lingering impact of the incident, and how it was probably a big part of how bad I was doing physically until late October.
So basically, I don’t have a total system figured out yet lol, but being able to put notes in the Cardiogram app is great, I just have to get into the groove of doing it.This stuff sucks, I’m sorry you know someone going thru it, it has changed me so much I hate it. I want to walk a theme park with my kids, not borrow a scooter for it. But it’s florida and the heat is beating me up when I pretend some days to be a real person
[doublepost=1544369346][/doublepost]
You know what. Doctor have to be somewhat arrogant to get to where they are. They have to more knowledge than anyone else about a specific field. Do you not want your doctor to have confidence in their skills and knowledge? Sorry, pacemakers don't fix any of those issues, HTN or afib. They prevent low HR that sometimes result from treatment of afib.
Oh I want my doctor to be smart and slightly arrogant. I don’t want them to thinking they are god and I am stupid.
The worst I have dealt with was a Ped Neurologist. Our geneticist has charted that she wasn’t sure we needed to worry about the neurology consult, because we were doing everything they’d suggest anyway. But the PCP felt it needed to happen, and we finally got in. They scheduled her for an EEG ahead of the visit - like 6 weeks because because that was how the scheduled was working out.
She bombed the EEG, that is all the ped and I knew.
Got us in the following week, Dr Fellowship comes in first, yammers for 20 fricking minutes about how genetics said we didn’t need to be there, and why were we wasting their time... I was speechless. Then our actual doctor comes in, the department head no less, and says, “I assume Dr F has explained the EEG results and what our plan is for treatment.”
No. No he hasn’t, but I I do know he is pretty sure I’m wasting his time despite my child having had seizures during the EEG.
It ended well - Dr F finished his stint before we went in for a recheck, Dr Cheif apologized, and we were treated amazingly by the department after that.
So, I don’t *need* MY doctor having the arrogance exhibited by Dr F, I need one open to the possibility that I’m also not stupid and might know something is not right with my body. The last 2 weeks I’ve dealt with an amazing foot and ankle orthopedic, all doctors at UF should be required to do rounds with this guy. Arrogant yet empathetic. It was a breath of fresh air.
