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Apple Closes Apple Watch Heart Rate Study to New Participants
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I signed up as soon as I heard about it. I also signed up for the Cardiogram study.
This honestly still makes no sense. First off scientific studies are held to extremely high standards in terms of information gathered. Institutional Review Boards are insanely protective about any study being conducted. Second it is HIPAA compliant. Third your name is removed from any data. Lastly it is heart rate for crying out loud. Joe Schmoe's heart rate is not much different than many many many other people. Knowing Joe Schmoe's heart rate would not allow any manipulation of him at all.
As I understand both cases (yours and the one mentioned in the article) were false positives (which is good for both of you). In the end the researches will know the rate of false positives. If it is high, it does not matter if the technique can identify real issues or not. It will simply be impractical and cost prohibitive in real life.
I did not know about the study. I did not understand how the heart rate could help me. I was interested in exercise, breathing, etc.
Last Sunday I clearly understood how the heart rate info would help me. Sat. and Sunday I felt tired after walking the dog a short time. I was jittery and tired. I went to bed and started reading.
2 hours later I get a message from my Apple Watch. It read something like this. “You have been resting for a while but your heart rate reads “41”. It might be advisable to get in touch with your doctor.”
Just in case I tried calling the doctor. Of course being Sunday, I talked to the nurse. She asked me a few questions and advised me to go to the hospital. she called EMS. As we were talking firemen and an ambulance showed up. I found myself surrounded by doctors asking if I had a will, a living will, etc. After getting scans, etc. Etc, they told me that the top part of my heart was hardly communicating with the bottom half.
They had an emergency operation, inserted a pacer. The doctors were shocked to hear my Apple Watch warned me of trouble. After telling my story to so many people in the hospital, I thought I would thank Tim Cook. A few hours later I received a reply wishing me well.
I’m still amazed how life is so fragile.
Last Sunday I clearly understood how the heart rate info would help me. Sat. and Sunday I felt tired after walking the dog a short time. I was jittery and tired. I went to bed and started reading.
2 hours later I get a message from my Apple Watch. It read something like this. “You have been resting for a while but your heart rate reads “41”. It might be advisable to get in touch with your doctor.”
Just in case I tried calling the doctor. Of course being Sunday, I talked to the nurse. She asked me a few questions and advised me to go to the hospital. she called EMS. As we were talking firemen and an ambulance showed up. I found myself surrounded by doctors asking if I had a will, a living will, etc. After getting scans, etc. Etc, they told me that the top part of my heart was hardly communicating with the bottom half.
They had an emergency operation, inserted a pacer. The doctors were shocked to hear my Apple Watch warned me of trouble. After telling my story to so many people in the hospital, I thought I would thank Tim Cook. A few hours later I received a reply wishing me well.
I’m still amazed how life is so fragile.
Ended for me also 2,460 contributions over 276 days, I was able to complete the survey but there is no indiction that the survey is completed, reopening the app and the Complete Survey tab is still there
What a great story and outcome for you. If the study saved just one person it was a worthwhile project and it makes me glad I was a participant. I hope they were able to get valuable information from the data we all provided over the past year. I wish you a very healthy and happy long life!
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Thank you so much. Several doctors at the hospital came to visit me to verify that the story they heard was true, lol.
Are y'all leaving this installed? I finally just copied the survey link to my computer and was able to do it there. On my phone it just spun trying to load and never did. The end survey asked repeatedly if I would like to continue this study if they did so, I said yes. But that's it.