Good day everyone!
It's Sunday June 20, Day 4 for me camping for the new iPhone 4.
Since yesterday evenings post I finally had the opportunity to use my phone and look at some websites that have wrote articles about me. The comments made by the majority on all of those articles are very heartbreaking and I'v been a extreme disappointed and hurt.
It's amazing how so many people in today's world jump to their own conclusions and speak before they think without knowing the person and/or having all their facts straight. Apparently there are more people out there to hurt to you then I thought.
The top few things I have noticed are the following:
1. Most do not have the respect for those who are disabled regardless of their condition.
In my case. I'm disabled because of my seizure disorder which prevents me from driving and scoring most jobs. This makes life EXTREMELY difficult for me or anyone with the same condition.
Some have asked about how bad my condition is so I would go ahead and tell everyone how bad it is for me sometimes so more will understand and have a little more compassion.
The seizures I have had since young age are non-epileptic and are unknown why I have them. My arms, legs or other part of my body twitch everyday and I have to remain alert as much as possible in case a major one happens. If its major, they are full body and look like grand mal (Tonic Clonic) seizures. They are always longer then 10 minutes and very severe. Some I have had in the past have been 2 hours long. What's more, there isn't really anything you can do, even if I end up in the ER.
In addition to the seziures. I also have 4 other learning disabilities including ADHD, Dyslexia, Dyscalculia, and Dysgraphia.
2. Some say I should "Get a Life!".
I did write a response to this earlier, but I'm going to say it again.
What I am doing right now is enjoying and embracing life! What life is it you want me to have?
Let me guess? You want my life to be just like everyone else who goes to work (nothing wrong with a job) and/or attend school and then go off to live the "American Dream"?
I understand this might what everyone does everyday, but this crazy world has seemed to forgotten what life is really about! Life is about enjoying and living it to the fullest without having someone else running it for you! Whats so great about life if you spend it doing what others want you to do and not doing what makes you happy for your own enjoyment? Is that what you really want when you only get one chance of living it and not knowing when it will end? I didn't think so!
3. Work and Money
Okay so most of the first media reports you have heard me say I don't work. This is not entirely true, but I don't have a job I do everyday.
I do have my own business I do from home every now and then, but its struggling at the point.
Some have asked what my business is. I prefer not to reveal this right now since in I'm process of restructuring and renewing the business at the point.
There are also others who have just ASSUMED since I am disabled that I am not disability SSI benefits. I have not once revealed or said anything about that I do. Not everyone with disabilities qualified or receive benefits!
I have said many times that I am paying out of my own earned money that will be coming out of savings!
Besides all of this, it's really actually not anyone's business when it comes to these things! If you asked someone random theses question on the street. They will come back and slap you in the face and tell you it's none of a your damn business and its rude to ask in the first place!
Sorry I haven;t gone into details and been off topic about the launch in this posting, but I figured these issues are more important to be addressed.
If you want to keep track of the camping adventure of mine and hear about the latest, you can check out this site me and another user on here have been working on. The website just went live last night! www.iPhoneFirstInLine.com
Hope everyone has a Sunday Funday and Happy Father's Day!
This world is filled with crappy people. With people still upset about healthcare reform if they even hear the word disabled they get heated. Just look at the bright side, you have a lot of people on your side willing to help you and offer friendship, not many people in this world can say that.
The people that post about tax dollars and stuff are not even worth the amount of bandwidth used for their post.
You have set a goal, now go complete it! Good luck to you.